We’ve been fortunate to be able to take care of Suleika in what I consider the best conditions. My wife has basically put her career on hold to devote to Suleika. With that disease the only way it’s going to go away she goes with Suleika’s horrendous experience.
When I was first diagnosed with Lukiemia I didn’t really know what a bone marrow transplant was I quickly learned that if my brother wasn’t a match I might have a difficult time finding a donor due to the fact that I have a mixed ethnic background, my mother is from Switzerland and my father is from Tunisia.
Although I realize how difficult it may have been for me to find an unrelated donor I also felt very ambivalent about the idea of him being my donor. He was about to enter his senior year in college and I didn’t want him to feel responsible for saving my life because as wonderful a gesture as that it’s also a pretty heavy responsibility.
Having a close family member going through cancer that means a lot of different things. The biggest issue is just being in school and having this going on too.
Not being able to be near my family all the time makes me feel guilty just because I feel I should be there, 24-7 (24 hours a day, 7 days a week) but then again that isn’t really realistic.
It’s really hard to reconcile a college life and the life of a cancer patient. It’s nothing for me but the result means everything for Suleika.
Well we have concerns how it would impact both of them, well obviously for Suleika we could be this concerned at many levels, something critical to go through, but it is going to be so, so hard.
He is in a way lucky, because he is the one in the family who can truly do something. And we all are like going through emotions and talking about you know, diet and this something healthy and trying to be useful but there’s nothing we can do much. And it’s hard, it’s hard as parent’s being so powerless.